I'm always worried what's in my head won't translate well to writing. But I also really want to write a lot right now. Recording what's happening to our family is the best way I know how to process this and to sort through some of the harder days. Harder weeks? Probably weeks.
Maybe just last week. Probably just last week...
I wish I could proclaim that my Faith never wavers, that I'm always on, that I can stay positive. That the long days of the hospital and the long drives home and back don't bother me. I wish I could tell you I don't get jealous of other peoples lives and the way everyone else seems to be moving forward while I feel absolutely stuck in limbo.
But all of that would be a lie.
I was so angry last week. I was sad and frustrated and exhausted and grouchy. Dean got way more tech time than normal because I wanted to escape through reading and I wanted to tune out the world. And the problem with that is I can only do it briefly before the next doctor/nurse/tech/social worker/child life/ nurse manager walks into his room...
The hospital feels both extremely busy and extremely slow.
What a weird place to live your life...
Having one child in the hospital and three at home feels like slowly being worn down, like a dull knife. I'm not sharp, I cut nothing, I'm barely functioning. Dean gets 75% of me because he needs me, my girls get the other 20% and 5% of me is lost in LA LA Land...the brain cells don't cell very well.
Which is why, typically, on a Saturday night, I turn into an absolute nut case and I stop being able to function. Which is great when I have three little girls who want snuggles and attentions and kisses. The panic attacks came back. Its the worst when I think about having to organize and pack up my things and the girls things...and have dishes to do...and gifts to pack for Dean...I didn't even attempt laundry this weekend (shout out to my Mother in Law who told me not to worry about it and bring it to her, do you know you're an angel?!). This Saturday I called in the troops, aka Crystal Hill Book Club, who cuddled, swept, did dishes, discussed books and made me laugh and stayed until I could breathe properly. Until the weight that was sitting on my chest lessens...and I can cuddle my girls.
On my drive into DC today, after my friends husband had our van checked because the check engine light came on after Church (are we laughing? We should laugh right? I mean, if I don't laugh, I'll cry again, and I think I'm dried up) I was thinking...
Here's my miracle.
I prayed for miracles when Dean was a baby. I begged God to heal his heart, to make this easier, to not give this to us. I begged Him to pass us up...and He didn't. Those first three years with Dean were so special and so brutal and so faith building. I was challenged in ways I never imagined. And then we had Ana and Daisy and Dean was so healthy and we have those beautiful seven years of peace and home and stability.
And here we are, in a month and will be longer. Waiting for the next steps to make sure our boy is safe to come home. And stay home.
And here is the miracle...
That I got out of bed and showered and looked nice for church.
That my Pastor hugged me this Am and it felt like being hugged by my Daddy.
That my friends drop their lives to support us, watch our girls, and be in our house with me.
The miracle is that I walk back into the Hospital, down this hallway, into this room and that I smile at my son.
The miracle is Dean dedicating his life to the Lord all of his own in the dark one night while we were here.
The miracle is that I haven't walked away from a God who I full well believe could heal my son, and that I choose to believe that it's for our good and His Glory.
The miracle is a Faith that shouts and sobs and cries and yells and still says, "Yes Lord, You are good."
The miracle is that my marriage is still strong despite seeing my husband like two hours tops a week right now.
The miracle is the envelopes that keep getting slipped to me and the emails that say "For whatever you need."
The miracle is the many people who deeply love our kids and have sent things to them just for fun. The people who don't just see my son but our daughters who are always hurting.
My faith isn't perfect, and I'm crawling in the mud right now, but I'm keeping my eyes fixed on Jesus and not the hard. I'm crying the whole time, mad about it, and boy does it look ugly...but I came back to the hospital, I'm here.
I'm ready for the next week.
And that's the miracle.
