Just How Real IS the Struggle?

I think often about what I'm going to write here. I'll have a thought or something will happen and I will think, "That could be a good blog post." I further evaluate it and think "Is this worth writing about? Worth sharing?"

Will it help others? Will it glorify God? Will it let people into our lives?

And right now, most importantly, will my kids want to read this and be proud of their mother?

I've started and erased and rewritten fifty million times this week. I know I need to write something because there is a storm residing in my chest and maybe if I wrote it would let up. Maybe.

I do not feel like me. I don't feel...functional. I'm having a hard time going to sleep and hard time waking up. I'm having a hard time just being in the hospital room with our son. I am having a hard time justifying, everyday, needing a break. I am having a hard time, most days, breathing. I've never been one of those girls who needed to be around someone, but right now, when Blair is not with me, I feel like I am constantly fighting off a panic attack. Sometimes I feel that way even with I am with him. I had to put my hand on his chest last night to remember to breathe, in and out.

I am pessimistic. I am frustrated. I am angry. I am grieving for the life I wanted for Ellie and for Dean. I know it. And please, oh please, stop asking me how I am. Because the question makes me struggle. How much do I tell them, I wonder. How much do they really want to know?

Nurses and Doctors they ask this all the time. I don't know how to tell them that though I am glad they are caring for my son, with all of them there it makes him less and less like mine and more and more like a condition and I want to take him away from all of them. I don't know how to tell them that I am afraid to be alone with Dean right now because he HURTS and I can't do much to help him.

I feel like they gave me back a different baby after this surgery. He won't smile at me, and why should he? He's been through hell. Rubbing his head does not calm him, talking to him does not calm him, holding him does not calm him...so in a desperate attempt to help him sleep all I can do for him is push a button and ask for more drugs for him.

I feel like an awful mother. Everyone keeps telling me that it's ok to have bad days, but my bad days have strung into a whole week of "I'll try again tomorrow" and so I try again tomorrow and when I fail I feel like it's not even worth trying any more. If I am not with Dean I want to be sleeping. But if I sleep too much I feel guilty for not being with our daughter, who I miss terribly. She's going to be two this month. Will I be there for her? I don't know.

I heard lots of stories about how easy life gets after the Glenn and people keep telling me that. Maybe it got easier for them, but for me, it feels like it got increasingly harder. I heard stories about being home five days after. We've been here a week and there has been no talk of discharge, oh, wait. There has. But only because we are coming home with a medication that I have to inject him with. Two times a day until further notice I must give my son a shot. Grand. I'm so excited to be inflicting more pain on my kid, but hey, it's ok, because he gets used to it!

He gets used to it...

I don't want him to get used to it. I am angry that we had this tease of life at home and now here we are, back in DC. I am angry that I can't give people more information. It's more of the same. Hurry up and wait. If there were updates people, I'd give them. But there are none.

Blair suggested I go home for a while. Ha. Let's pile more guilt on top of the guilt I already feel. We'll have guilt cake, it'll be great.

In one 24 hour period I had three friends tell me they missed me, and then my husband told me the same thing as well. Don't worry guys, I miss me too. When I find me, I'll let you know, because this crap attitude I have is getting old.

I want to go home. I want to be home with my Ellie, I don't want my parents to have her any more. She's so tan right now. She's so precious. And I'm missing it. She has no idea what she's giving up...no idea how much I miss her...no idea how guilty I will feel about having to leave her with her grandparents for so long, no idea how jealous I am of my mother for spending every day with her. How angry I am that I am not there to pick her up in the morning, to hear her "Good morning, where Deedo?" My children are not only missing out on having their mother, they are missing out on one another. I am not looking forward to the awful adjustment period that we have together every time we come back from the hospital. I hate that I just wrote that sentence.

And I know I know, you shouldn't feel guilty, this is what you have to do, we're here for you if you want to talk, take it easy, you're doing a good job, we're praying for you, God is there when you aren't, people love you...does that about cover it? Right? Am I missing anything that someone might want to say to us/me? I feel like I've stopped trying to talk to people because I don't want to hear any of this any more. We've been here four months. We were home a total of two weeks and five days, and not consecutively. And I understand these are all ok emotions to have as long as I do not sin in them. Listen, I know the stuff ok. I know it. And I'm not asking people to even go the opposite where they tell that this sucks (I already know that), or that next year will be so different (I know that too) or to take things one day at a time (I do that).

I don't know what I need from people right now. I don't know what I need. I don't know how to be a good mother right now (And before you tell me that I am, somewhere in the back of mind I know that too, I just don't feel that way right now). I don't know if I am very strong right now (once again, please don't try to affirm how strong I am, I'm blatantly telling you, right now, that I'm not, telling me I am only makes me roll my eyes and want to sucker punch you. #truth).

I am trying to find the balance between "I'm being whiny about this" and "this truly has hurt my soul and been harder than I ever imagined". Did you know it's 10 and I haven't been to see our son yet? It is 10 and I haven't been to see our son yet. My feet feel like boulders. I feel chained to this circumstance. I am angry for Blair and for Ellie and especially for my son.

Did you know, I've had friends have babies while we've been here? I had to pray through a lot of things. The unfairness of it all always came unbidden when these precious babies were born. Oh, you were home a week after birth, that must be nice. Oh, your child isn't struggling with pain because they had their chest and sternum cut ok, how wonderful for you. It was a cycle of hurting for my son and being happy/angry with them and then feeling guilty again for being angry that other people aren't struggling.

I don't even know why I'm even telling anyone about all that. I don't even know what I'm writing right now. Maybe this is some desperate attempt to function better today. Maybe this is some last ditched effort to pull myself up by my boot straps and get to the hospital and be with my son. Do you want to know how real the struggle is?

Really real.

It's really really real.

And that's where I am.

I'm just in the middle of a really big struggle.

Messy

I've been thinking a lot about this Blog and what it's named. Been thinking about Art and Life and all that jazz.

The other day my amazing Husband picked me up some gesso from the store so I could re-paint a few things. As I was using it, little bits of paint splattered onto my hand, and then got wiped onto my sleeve. I was struck by the thought that I don't have a pair of paint pants right now...and I got sad.

Art can be so messy. I love when it is. I love when there are flecks of paint on my nails and on my clothes. I love the process of art. I love that you start with something and work until you create something new and unique that you like. It's a lot of fun.

So often when people look at a piece of art they see the finished piece. Something whole. Put together. They consider it beautiful. As they should, art is meant to be looked at and enjoyed.

When I look at pieces of artwork, I see the love and the process behind it. I wonder at the hours it took to make something, the work that went into it, the layers and layers of paint. I wonder if the artist thought about scrapping a project entirely and starting again. I wonder if they ever hated a piece only to have loads of people beg them to leave it alone.

Art is a messy, beautiful process.

Life is a messy, beautiful process.

God Art.

I wonder if He looks down at our lives and loves our messy beautiful selves. I wonder if He knows we are works in progress and cringes sometimes while He works on us.

It's a quickly going to be a new year.

I'll be honest, I'm not looking forward to it.

I'm not looking forward to the fight my son will have. I'm not looking forward to leaving my girl while I go to have him. I'm not looking forward to it, I'm just not.

I'm looking forward to finding out how God will move. I'm looking forward to finding out how close Blair and I will come through this.

If I look at this past year as a canvas, as an art project, I would paint over parts and start again. I would paint over the loss of yet another baby we didn't get to know. I would paint over the days this summer where I could barely make it to the bathroom before getting sick. I would paint over the day that I went to have an ultrasound and they "found" something...when I was alone in my car, crying because I didn't understand and didn't know who to call or what to do.

Here's the deal though, just because you paint over something, doesn't mean it goes away. Those layers will always be there. It will always be part of that painting.

I'm marveling that despite my messes, despite the long process, I am still becoming God's Art. I am still a masterpiece. He loves me, right here, right now. Even on my worst days (and believe me, days when I have to call a friend to come change my girl because I literally can't stop throwing up...that's a worst day).

It's important to remember I think. That Art is Messy. That even God's Art gets messy.

That I am still a Mess.

But with every day, with every brush of the Savior's paint brush I become more and more beautiful.

A Lady Day

Had the opportunity today to go talk about some things with some wonderful woman! It is amazing to me the things that they do not teach you in school, and all the things that are lacking in our education, especially as woman.

My mother, younger sisters and I headed to a Seminar this weekend called Maidens By His Design. We learned about menstruation  hormones, cramps, herbs, alternates to feminine products, and we talked about taking your thoughts captive. If you aren't a girl, and you don't want to know about these things, well, I feel for you. God has designed our bodies for a specific reason, and with woman to have you boys, you wouldn't be here. I am blessed with a man who loves every aspect of who God has created me to be, including the parts that people think are "gross". I have ovaries  And a uterus. And that is where a baby is grown and protective. My Beloved, he knows this, and loves that God would do such an amazing thing. You can get even more information going to this site on facebook.

I think the thing that struck me most was "being hormonal is not an excuse to sin." The woman who wrote the curriculum for the girls is actually a midwife, who I've seen her in action (October 1st, 2012, the first time I saw a home birth and photographed it!). She was talking at one point about how she tells pregnant woman that very thing that being in labor is no reason to sin. As I am not pregnant (yet, Lord-Willing!) I applied this to my own life. The week before I start, I get crazy. I cry for no reason, I get angry for no reason, I sometimes get super hyper. It's insanity. Recently, I've noticed more and more how those violent moods affect others, and how they make others feel.

What I took from this seminar, along with a lot of vocabulary that I didn't know that I didn't know, I learned and took to heart to take my thoughts captive. I used to tell my Beloved that ADHD was an explanation  not an excuse. Well the same goes for me and hormones. It is an explanation, not an excuse to be mean to him or others. I need to focus MORE on the Lord when it's "that time of month" or as I like to say when I'm "being a girl".

It was a lot to think about. But this is what I think I need to work on the most.