Take Four

I have officially started and deleted three blog posts, maybe the fourth one will break me out of the weirdness I've been in. Writers block has me hard and I'm not always clear on what I want to write about or how to make it cohesive.

I worry that people will get tired of hearing what I have to say. There are a million and one blogs out there. There are a million and one writers, most are far better than I am. Most are better at conveying their thoughts than I can ever hope to be.

I am afraid that people will find my life boring. I'm a mom now. What's more, I'm a mom under house arrest until cold/flu/RSV season is over. Very rarely do I leave the house. Very rarely do we get to go anywhere together as a family. We don't even get to go grocery shopping together. I take Dean to his appointments or possibly Grammy and Grumpy's house when I'm really feeling lonely. I cancel plans with people who tell me they have colds in the hopes that we never bring it into this house. Blair goes to work, he comes home.

I stick so closely to our routine and schedule because my children (bless them) have started taking naps at the same time. And Lord Help me, that hour of quiet is LIFE to me. LIFE. It's what gets me through the day. If we make it through nap time I can make it until bed time and God help us all if the routine is thrown off. And this is all I have to write about right now.

Nap time and quiet time, kids TV shows and routines. I change diapers for a living and I clean. I constantly clean. Because if I do not clean the house will erupt and chaos will ensue and DEATH DESPAIR DESTRUCTION. Most of the time I realize what a blessing this is. My baby boy will be a year old soon. Whoah. The weight of that does not escape me.

Mombie though is a real thing. I find myself putting off showers (because I'm not going anywhere and honestly, I'd rather sleep). I either ignore people or I talk too much and end up complaining. My friends don't ask me advice that much any more because I have "so much on my plate already".

My husband is bi polar and while I don't talk about that much on my blog, it affects me in huge ways. He's been great about taking his medication, but the weather and the long hours and being couped up at home and stress all play into his moods. Some days I don't know who I am waking up to. Some days I don't know who will be coming home from work.

And I am tired.

I am tired of bills and appointments and blood work. I am tired of calling and emailing a million times to get his medications straightened out. I'm tired of the crippling guilt I feel when he goes a day or a week without one of his medications. I am tired of hearing of another CHD Death.

Two babies. Two babies died this month and everyone is arguing over people they will likely never meet. People being mean and petty and name calling and I'm wondering how long my son will live. Wondering if he will be next. Wondering if his heart will last. We've made it a year. A whole glorious amazing scary tough hard ridiculous year. I've done things I never imagined I would have to do and I cannot fathom that we have had him almost a full a year. 365 Days. Wow. It gives me chills to write that.

The Heart Community is amazing. You will find some of the most amazing people there. I've made some crazy amazing friendships through support groups and messages. We are friends. We are family. And when one of us in the heart community hurts, we all hurt.

I follow stories of babies who are fighting, who are on ECMO, who need miracles. I follow a young man who is on Hospice and I follow babies who have had heart transplants. I hope for them. I root for them. I pray for them. I hurt for them.

There is a lot of life in these groups. Success stories and encouragement. But there is Death as well. And I live with that. I have to. I embrace it. I have to. Because Death is part of Life and I hold it close to my chest and whisper "please not us, please not us"...knowing I have little control over it.

I've been hesitant to write about this. About the Death that I see. People do not want to know about the death. They do not want to know that it could be my son. They want to think the best and I'm so glad that they do because I'm cautious and scared still. Learning how to live life fully while watching the health of your child is a hard thing.

When my friends have Heart Caths or procedures...I'm like a mad woman checking for updates. My parents ask about the different kids and stories now. They pray for them too. And when they come out of these procedures and operations I'm elated. I am joyous. Because if they keep making it we can keep making it.

I am tired.

A bone weary tired that most of the time I can forget. I have been blessed with space and time to be able to work through my feelings, to be able to draw and create, to talk to people. I workout and I grocery shop by myself (probably because we can't as a family haha). I have friends I text and talk to, I know I'm not alone.

But on the worst days...it feels like we're in a life boat and we are very very far from the shore. Very far indeed. Hematology appointments get me every time. They throw me into this funke. They stuck him five times today. Five Times. I held his legs and arms down while he turned red and tears ran down his face. And I have to pretend he's not my kid. I have to pretend that it's ok. I have to pretend that this is what every parent does. I have to pretend that he won't remember any of this. I have to pretend like it will be over and we won't have to go back next month. I have to pretend he's not my son or I think I would go mad.

Even in the middle of this I had to stop writing and go help Blair while Dean vomited.

I hate CHD's. I hate HLHS. I hate that I see so many parents say good bye to babies. I hate that I watch people struggle. I hate watching techs dig around in my sons arm to get the blood to flow. I hate that babies need heart transplants. I hate it.

And every now and again I need to say how much I hate it. How much I hate all of this. How much I feel was stolen from us knowing that it was so much could be given to us. I hate how much it stretched me out of my bubble, how it it ruined things for me (I get so weird about peoples 20 week scans...you see gender...I see organs). I hate how much it made Blair and I argue, how stressed we both were (and really, are). I hate how much we had to be carried by other people. How often we had to and have to ask for help.

It all makes me a better person, but that doesn't mean the growth didn't hurt.

I am tired.

Tired of seeing Death so often. Tired of seeing hurting babies so often. Tired of people being so petty about the stupidest things. And physically...y'all...I could go for a nice. Long. Nap.

Of Broken Hearts

I am not there yet.

Which means that my heart thinks and feels awful awful things.

Mostly, jealousy.

Huge amounts of jealousy. Big heaping spoonfuls fed up to me on a barbed wire spoon, cutting me when I try to swallow.

I am jealous that you got to hold your new born after they were born. I am jealous of your hours old photos of siblings meeting one another, Daddy holding Mama's back. I am jealous of your breastfeeding pictures, your laments over cracked nipples and cluster feedings. I am jealous of your new born snuggles.

I am jealous that you take walks outside. That your child rolls or lays on their belly. I am jealous that you don't have to worry about g-tubes, or oxygen levels, or blue lips. I am jealous that a cold means a cold and not a hospitalization. I am jealous that you see your friends as often as I see nurses. I am jealous of belly laughter and smiles and cries that are simply cries.

I compare, I compare too much. I look at your life right now, as it is and I think about our lives right now, as they are. And because I am human and far from grace, I want you to hurt. I want to gather up the blackness and ugliness I feel and give it you.

But in the same breathe...I don't want you to hurt.

I don't even know how to articulate these feelings. Except to ask for forgiveness when I shy away from you. If I cry when I look at your child. If I have to hide your pictures and your posts from my eyes. If can't help but mention where we are and how different it is from where you are.

Large chunks of my own heart are still healing. It was torn open the day our son was born and I went to sleep without him. It was ripped just a little more when he was three days old and I gave my beautiful whole unbroken son to some nurses and got back a broken open baby that I barely recognized. It was stitched back up the day that I got to hold him again. Those stitches rip open every time we take him back to the hospital. Every time I give him a shot.

Be gentle with me, my heart is broken too.

And when I see you, and your whole baby and your whole family, the redemption and the rainbows, the scars in my heart hurt just a little more. Again. And I do not want you to know what this is like. I do not want you to know this pain, this deep seeded jealousy that threatens my sunshine.

I am glad that you got to nurse your baby. That you got to hold that little girl or little boy. I am glad that you never worried if their heart would stop beating. I'm glad you do not have to administer medications and watch for blue hands and lips. And at the same time, when I see these things I am reminded how different this story is.

My son is not the only one working on mending their heart.

God is working on mine too. Bit by bit picking up the parts that I thought I "couldn't" glue back in and doing just that. Each time that it feels like my heart will break from the loss, the pain, the jealousy, the anger, he gently threads His needle. And He says "It is sharp, it will hurt. But you will be Whole. You will be mended."

Be gentle with me.

My heart is being operated on too.

Pockets

I have started and deleted at least three blog posts.
I have written countless things in my head and prayed for the time to get them OUT of my head.
I have explored topics and themes and thought about some of the "little" moments in life that have been happening, and some BIG moments in life that have been happening.

I have thought a great deal about Love and what it means and how we do it. Thought a great deal about how love is a choice and a hard one at that. How we chose to love our spouses, chose to love our kids, chose to love our family, our friends. Thought a lot about specific ways that people have chosen to love me, to love my small family.

I have thought a lot about love and a lot about loss. Because I have known loss.

We have become bosom friends. Nestled together. Loss of friends, loss of babies, loss of dreams and hopes. Loss has shifted the way I think, the way I handle things, the way I talk to God.

I woke up today wondering about loss and about pain. About why we chose to put a price on loss. "You have lost more than I have, therefore, your pain must be greater." No. We both have lost and that loss has created pockets of sorrow in our souls. Sometimes we can live and forget those pockets, sometimes our hands are stuck in our pockets, jingling those losses around like the key chains on my car keys. Sometimes those pockets are full and heavy and present. Sometimes they are light, the lint that is there...we barely feel it.

I've been having some of my own heart issues lately. Not physical ones, but spiritual and emotional ones. Ones that feel very very very big. Ones that make me a bad mother and bad wife and a bad Maddie. I drifted away from things I know I should be doing, forgetting the BEST things in pursuit of the GOOD things.

It is GOOD to have an empty sink, it is BETTER to have spent time with God.
It is GOOD to fold clothes, it is BETTER to lay on the floor and let Ellie climb all over me.
It is GOOD to work out and try to be healthier, it is BETTER to sit with Blair and listen to his day.
It is GOOD to tell people that I will be praying for them, it is BETTER to ACTUALLY pray for them.

I am working on bringing my heart issues to God and forgetting them there, Emptying my pockets of the sorrow and loss I have been carrying around for the past month. Letting go of the fear and the worries and expectations and pain that has rooted deep into my soul. It is a long hard journey. And to be very honest, I already want to quit, because some days, all my son does is cry and I want to scream. And while it is easy to say "I am thankful he is crying" it is another thing to LIVE that.

One persons pain and struggle does not diminish another.

It is what we chose to do with the pain we have that makes us all so different.
Do you give up? Do you let it ruin your life? Do you live in that?
Or do you get back up? Try again and again? Die to self minute by minute, because let's be honest, day by day is too hard...

I'm working on emptying my pockets of the sorrow and pain that I carry.
You should too.

You'll be lighter.

Part Two: Chapter Five: "I Can't Give Myself Grace"

I am waiting for nine thirty. At nine thirty I can give Dean his Flecanide and then curl up in bed next to my little snuggle buddy.

Ellie watched too much TV today. No one, including myself, got dressed today. We hung out in our pajama's. At one point, Dean was asleep and I was falling asleep on and off on the couch while Ellie "watched" (I use that term loosely, there were many wipes lost to this 30 minute time period) Daniel Tiger and Masha and the Bear.

This weekend one of the pastors at our church came and took care of the yard for us. It is no longer a jungle. It is amazing to see people physically being the hands and feet of Jesus. I am trying to wait patiently during this time...because I want to one day help others the way that we have been helped. It feels awful not being able to give back. Seasons. I remind myself this is a season.

I am learning what it truly means to give yourself grace. What I've found is that I suck at it. I don't want to give myself grace. I don't know how to. Which is why I rely so heavily on my Heavenly Father. The grace I could "give" to myself is crap. The Grace He can give me is infinite and glorious.

His grace knows when I am at the worst point in my day. When I look around and think of the million things I wish I could do. When I look longingly at my "art corner" and wish I could work in an art journal, or a painting, or just sit there in general. Alone. My heart in these times is selfish and self-seeking...

His grace meets me when my son wants only to be held and I remind myself how for a month straight I couldn't hold him and it hurt my soul deeply. Grace happens at the crossroads of "this is what I wanted" and "this is your reality". It allows me to listen to my sons crying and remember that he was silent for so long. There are blessings in his screams.

Grace rubs my back when I am changing yet another diaper, Ellie kicking her feet in the air, running from me because she thinks its a game, the only one I have "time" to play with her. Grace knows that I feel guilty for not doing more with here and for her. As though I am trying to catch up on 70 plus days where I was without her. As though I can take back the months I missed seeing her grow. When my mom understands the way she talks more than I do.

In the middle of the night when my eyes are heavy and my heart is missing Blair and Dean is screaming yet again and I don't know how to help settle him, Grace finds me, hugs me, tells me that yes, dawn will come. We will make it through another night. It tells me that I am not a bad mother...this is whispers frequently and lovingly to my wounded mama soul.

I cannot give myself grace. I do not have the mental capacity nor the fortitude to do so. I am too tired. I am to concentrated on making sure I don't hurt my little girls heart by being to abrupt with her. By dismissing her needs...when she so clearly still needs me. Finding the balance between my two children, especially given Deans heart, has been challenging and trying and daunting and exhausting.

And it has been beautiful. To see him look up at his sister and stop to study her. To see her pat her lap and ask for her "Deedo". To hear her pray at night for the people she loves, Grammy, Grumpy, Mama, Daddy, Deedo, Uncle John, Kackie, Abbie, and usually Daddy again.

At the end of the day I do what I think every mother does: their best. And sometimes (everyday, really...) their best falls so short of what God intended. As we all do. This is where His beautiful, life saving, soul soothing Grace steps in. A reminder. I do not have to be enough because Christ is enough in me. It is a balm to my soul on these days where I feel I have failed my children.

Do not give yourselves Grace, oh my Mama-In-The-Trenches friends, my struggling to conceive, my first time mama friends and third time mama friends, ASK Him for it. Rely on His Grace. His Grace is not flawed or marred. The price that comes with it is that you surrender your lives to Him. Rest in Him. Find Love and Strength and Grace through him.

Realize that none of us, no matter where we are in this life, can do it on our own.

Chapter Seven: "Dear Ellie..."

Dear Ellie,

This is as much your story as it is your little brothers. You don't know this, but you are giving up so so so much so that Daddy and I can be with him. You won't remember so I want to tell you, because it is important.

You are such a little girl. So tiny still. I feel like your little brother will take very much after the Carrigan side of things, as you took after the Jaques side of things. He might outweigh you pretty quickly. You will always be the big sister though. You will always have 20 months of life on him and trust me, that 20 months will go a long way at some point.

Don't forget that I had you first. Don't forget how precious those 19 months of just you and me and Daddy were. Don't ever, even for a minute, think I don't love you as much now that you have a brother.

My heart grows to hold both of you, in big big ways.

I want you to know that people love you. Uncle John and Aunt Kackie who watched you while I was in labor, giving up their Super Bowl Sunday to come take you. Mimi who flew all the way from India to meet your brother and to be here to play with you...I can't tell you how wonderful it was to know that you were with her. That she was with you. Grammy and Grumpy who might have you for a month or two while we wait and see how baby brother does. All of these people love you, so much.

None of them are Me though.

I feel guilty Ellie. I feel like less of a Mommy because I can't do everything for both of my babies. I miss you during the week in the worst ways. I'm terrified I'm going to annoy Grammy because I ask after you all the time. I'm terrified that she will resent having to look after you for weeks while I'm here at a hospital. (She assures me this is not the case...but she's your Grammy, not your Mommy, and I don't want you to ever forget that). (So for now, it's fine that she gives you ginger snaps with whipped cream).

I have to fight every day to remember that this is what God has given us. I have to fight every day to remember that in Christ I am enough, and I want to fight, because I want you to know that. You are loved. You are enough. You are strong. You are beautiful. You are kind. You are a Daughter of Christ and His love for you is BEYOND what I will ever be able to tell you.

But if I don't believe those things for myself, I know you will never believe them for yourself.

So I fight.

We're fighters Ellie. We come from some strong women, women who have been through the ringer and come out stronger on the other side.

You and me, girlfriend, we're going to come out stronger from this.

I'm going to ask so much of you one day, especially when it comes to your little brother. I'm going to ask you be kinder and gentler to him. I'm going to ask you to protect him and watch out for him on the bus and while you guys are at school. I'm going to ask you to take care of him when I can't, and I'm going to ask you to stick up for him when I'm treating him like a fragile baby doll. He's not. My head knows this, but my heart doesn't yet. Be his Big Sister. Stand up to me sometimes too.

Already you are giving up so much time with me and Daddy. Already you are making sacrifices of love, already you are showing your little brother how much you love him, simply by letting me and Daddy be here while the Doctors fix his "owies" as you like to call it. Already you are strong and teaching me to be strong. Already you show me so much compassion when you snuggle me while I cry, just because I have the privilege of holding you.

We are going to argue one day Ellie girl. We are going to fight and scream and be so so angry at each other. I might not like you and you might not like me. In fact, I promise that we won't like each other for a while. I also promise that at the end of the day, there is nothing you could do that would make me love you less. Never. My Mama said that to me once and I will say it to you, because it's truth.

You won't remember the long weeks without us, you won't remember the Facetime calls or the Skype Dates. You won't remember the tedious car rides where you tell me "ow ow ow" just because you want out of the car seat.

You won't know that I cried the other night because I just wanted to be home with my babies, you won't know that my heart hurts every time I had to leave you.

You wouldn't know any of this, unless I told you. And I want to tell you Ellie girl.

Because your brother is fighting a battle. Because you and me and Daddy...we are all fighting a battle.

And without you, you brave strong beautiful little girl, we wouldn't make such a great team.

Deano's story is your story too Ellie.

Don't forget that.

Love,
Mama

Chapter Five: "Our God is In Control"

I hate that sometimes. I wrote the title and immediately was like "That's such a yuppie Christian thing to say. Ugh Madalynn."

Just because something is said a lot though, doesn't mean that it isn't true. This is truth.
God is in Control.

I remind myself of that a lot, I have to. We have so many ups and downs, I got sick, Ellie has a cold and will not be staying with us this weekend (and I will miss her something fierce), Blair finally admitted how useless he feels...how he was ok with me being sick because it meant he could take care of me.

We gave ourselves permission not to be at the hospital all night. We put our trust in our son's Doctors and Nurses and I told myself all afternoon, "God is in Control." I've heard it said that He's up all night so I don't have to be.

I find amazing comfort in that thought.

Some days, this just...this just sucks. Hard. A lot. More than I can describe unless you've gone through it. Not something similar, it. This. Hypoplastic Left Heart Syndrome. Open heart surgery mere DAYS after being born. Do you know what newborns should do? Poop meconium, nurse at my breast, and make little sounds in the middle of the night that make me smile. They should be crying moving, wiggling, I should be changing his diapers.

My reality: I. Have. To. Wait. And pray and talk to him and rub his fuzzy little head and be away. And I can't plan a dag-on thing. I have NO idea when we get to come home. None. And even when I do find out, I won't trust it. Yesterday he was doing great, by this morning, they were doing an echo because they weren't seeing progress as he should. By this afternoon he was ok. Seriously, what the hell?

We don't go day by day. We go hour by hour.
And we wait. So much waiting.

Look though, there has been laughter. God knew that we would need laughter.

The day he had surgery his godparents came and sat with us. I love them. They crack me up and it was so good to laugh with them during that time of waiting.

Like the time my amazing mother in law and Blair's Mamaw came to bring Ellie to see us. They took us back to Front Royal to get things and boy was it an adventure. We made wrong turns. We got lost. I had to pump in the car, hysterical. I had them rolling. "Oh Hello DC, this is my boob, yup, it's happening, move alone."

Or the night I was just having a bad day. I have this weird thing right now that when I cry, I would just rather be alone. Most of the time, this happens in the shower. Blair knows. He lets me and I love that. I jump in thinking "I'll cry for a little and get it out and be done and move on." God knew that I needed laughter. Basically, with pumping, I had not been emptying myself well enough and had a knot. I worked it out in the shower and then just shot milk for a good two minutes and I laughed and laughed.

Yes. That was a story about me milking myself. You know what? I want my son to know that story some day. Because dude, it's FUNNY.

Wednesday night My amazing mother in law brought Ellie in to have dinner with us, and then she and Blair went to see Deano. When they got back I had given Ellie a bath and put her in her footie pj's. Her pj's don't have good traction. My girl LOVES LOVES LOVES the elevators, she dances in them, and tries to push the buttons. When we all got in to say good bye for the night, she ran and completely wiped out and fell on her bum and hit her head. And the three of us just laughed and laughed and laughed. (She laughed to, by the way)

Yesterday, Blair's voice randomly cracked while he was talking to one of  Deano's nurses. I thought I was going to pee my pants.

Here is why these things are so important: because God is in Control. He knew, he so so so knew that we would need to fill our time with laughter. He knew we would need to allow ourselves to laugh.

I've been thinking about that all day. I was sick and came back early and slept and prayed and talked to people. If I were in control I would have completely forgotten about Joy and Laughter.

My God is so good that He doesn't forget those things.

I've been told how strong people think I am. Suddenly, I feel it. Don't get me wrong, they did their echo today and I was terrified they would "find" something. Being strong doesn't mean you're not scared though. I think it just means that you cry when you gotta (in the shower or wherever) and then you wipe those tears and say ok. Next battle. Bring it.

There are so many people I wish I could thank. So many who have no idea what their kindnesses mean to me. My cousin was here to day, haven't seen that kid in forever, and what did I do? Fought tears and asked to drive me somewhere. Without hesitation he did. (His girlfriend is so lucky to have him...shout to Carter who has actually subscribed to my blog...you are winning, just so you know)(and so is he). My parents, Blair's parents, friends from church, my older sisters, my big brothers...strangers I've never met in person...God is using YOU all to remind me that this is not something we are fighting alone.

God is using YOU all to remind me of His unfailing wonderful Control in my life, in Blair's, in Ellie's, in my Son's.

Literally every time I start to feel discouraged SOMEONE texts me. Every. Single. Time.

I am blown away by God's control. I am blown away by His love.

I am hiding there. Sheltered in His wings. Crying and Laughing when I need to.

I am thankful. More than anyone will ever know for the way this is drawing me close to God and closer to those who love me and whom I love.

Chapter Four: "Think of Quiet as Healing"

When it comes to my kids, I think, like most moms, I'm a doer. I want to DO things. Things that seem unimportant to you mean the world to me.

I see other moms right now with their babies, big ones, small ones, fresh from the womb ones...I see them holding and snuggling their babies. I fight against being jealous, though I am. I give that up and remember how my life is so richly blessed. I take that to Jesus. Daily.

Right now my days consist of being in a hospital room with my husband and my now week old son. We bring our kindles (We read), our computers, I have a bag of craft things. We listen to music, I post things to Facebook, I text my friends. I Skype with my beautiful girl. Today, I paid a bill, planned our month in finances, organized a list of people who are willing to help watch our girl, called my mother in law, called my Mother, planned, wrote lists, and crafted a cute name tag for Deano's bed.

I had uninterrupted time in the quiet of the day.

There was no Ellie talking about bears, no her getting into something she shouldn't or climbing on a table. She wasn't pitching a fit, she wasn't whining or singing. She wasn't here to dance to the music Blair played for a short time.

There was no Deano waking up, demanding to be nursed, crying because he was wet, needing a diaper change. There was no Ellie trying to kiss Deano for the tenth time, no her trying to pick him up. He doesn't coo, he doesn't cry, he doesn't stir. He is still.

This room is still. This room is quiet save for the many machines that monitor and beep and keep my sons heart and lungs and kidneys working. There is a low hum in his room. Often this place is just so quiet.

I chafe at it. It gets under my skin. I talk to Blair about everything and nothing to fill the silence. I talk, but not too loud, afraid that if I do I might miss the slightest sound. I play music, worship songs encouraging me to draw deeper to Christ, but not too loudly, because this space feels as though there is something there, just on the brink, and if anything is too loud we will not hear it.

I want to hear my son cry. I want to hear him coo. I want to see his eyes. I want to snuggle him close. Hold him to me and whisper my love to him, my love and God's and Daddy's and Ellie's. I still do that, I talk to him all the time. I joke him about his "girlfriends" (nurses) and remind him that he will under no circumstances be a player. I told him about the day I found out I was pregnant, how I told Amanda through Facebook before I told anyone else. How scared I was.

How all I wanted, more than anything, was for him to have a heartbeat.

How I cried when I first heard his heart beat.

How scared I was when I found out it was his heart that had an issue...how I wondered, in the silence of the night, if at any time, his heart would just stop...

I tell him how wonderful it was to feel and see him move inside me. To watch him grow. To bring him here, though in my soul I wanted him to stay in me, safe.

Someone reminded me today, that there is healing in the quiet. In the stillness.

My son's chest is still open. If he were moving, there is so much that could go wrong. It is hard not to hear him cry, but oh, am I thankful that this has given him a chance to live.

There are things that God is teaching me that I didn't know I needed to learn. Like how to be still. How to appreciate the quiet. How to accept it and live in it. How NOT to fill the silence. How to enjoy it and love it. How to see the deafening beauty that is the quiet hum of a machine. To see beauty in his open chest and swollen body.

I am reminded, daily, that he could be gone by now. When I look up from my book or my craft or my lists or as I get off the phone and see his little head there...there is a feeling of love that overtakes me. Of remembrance that this surgery has given my son a chance at life here with me, with Blair, with his sister, and Grammy and Mimi, and Grandpa and Grumpy, and countless Aunts and Uncles, and cousins.

Today I was reminded that the quiet means he is healing.

I couldn't help but think of the times God has seemed quiet in my life.

Put those thoughts together.

Maybe those times we think God is quiet, He isn't.
Maybe He's just leaving room for us to heal.

Embrace a quiet night.
Let it Heal you.  

Messy

I've been thinking a lot about this Blog and what it's named. Been thinking about Art and Life and all that jazz.

The other day my amazing Husband picked me up some gesso from the store so I could re-paint a few things. As I was using it, little bits of paint splattered onto my hand, and then got wiped onto my sleeve. I was struck by the thought that I don't have a pair of paint pants right now...and I got sad.

Art can be so messy. I love when it is. I love when there are flecks of paint on my nails and on my clothes. I love the process of art. I love that you start with something and work until you create something new and unique that you like. It's a lot of fun.

So often when people look at a piece of art they see the finished piece. Something whole. Put together. They consider it beautiful. As they should, art is meant to be looked at and enjoyed.

When I look at pieces of artwork, I see the love and the process behind it. I wonder at the hours it took to make something, the work that went into it, the layers and layers of paint. I wonder if the artist thought about scrapping a project entirely and starting again. I wonder if they ever hated a piece only to have loads of people beg them to leave it alone.

Art is a messy, beautiful process.

Life is a messy, beautiful process.

God Art.

I wonder if He looks down at our lives and loves our messy beautiful selves. I wonder if He knows we are works in progress and cringes sometimes while He works on us.

It's a quickly going to be a new year.

I'll be honest, I'm not looking forward to it.

I'm not looking forward to the fight my son will have. I'm not looking forward to leaving my girl while I go to have him. I'm not looking forward to it, I'm just not.

I'm looking forward to finding out how God will move. I'm looking forward to finding out how close Blair and I will come through this.

If I look at this past year as a canvas, as an art project, I would paint over parts and start again. I would paint over the loss of yet another baby we didn't get to know. I would paint over the days this summer where I could barely make it to the bathroom before getting sick. I would paint over the day that I went to have an ultrasound and they "found" something...when I was alone in my car, crying because I didn't understand and didn't know who to call or what to do.

Here's the deal though, just because you paint over something, doesn't mean it goes away. Those layers will always be there. It will always be part of that painting.

I'm marveling that despite my messes, despite the long process, I am still becoming God's Art. I am still a masterpiece. He loves me, right here, right now. Even on my worst days (and believe me, days when I have to call a friend to come change my girl because I literally can't stop throwing up...that's a worst day).

It's important to remember I think. That Art is Messy. That even God's Art gets messy.

That I am still a Mess.

But with every day, with every brush of the Savior's paint brush I become more and more beautiful.

Ok

This is my second miscarriage. Everyone wants to know how I am.

Here's how I am. I'm ok.

Just ok.

My first miscarriage was my first pregnancy and it hurt my heart like no other. It came fast and swift and a week later it was all done and my body had healed physically. It was the emotional scars that I had to deal with that first time.

This time, it's not so much an emotional turmoil as much as it is a physical thing.

I'll spare you details that are better meant to be told to a doctor, but I am going to tell you that this time it has been painful. And it has lasted a long time. In fact, as of right now, losing this baby is still not over. I am reminded constantly that my body rejected another baby. I live with that everyday and I doing my best to accept it.

My heart was prepared to lose this little one. For weeks I'd been telling my husband that we needed to see if this baby had a heartbeat. I had many nightmares about waking up...well, not in a good state. When I started spotting, I knew right away. When we went to see the doctor, I knew that even though she was hopeful that when we went for that ultrasound that I would not see a heartbeat.

I prayed that I was wrong.

I begged to be wrong.

Fact is though, I wasn't.

And I'm ok.

I haven't been to work much because like I said, there's a fair amount of pain this time. Last Wednesday I was afraid I wouldn't make it home.

What you might not know about miscarriage is that my body is in labor. A much milder form, and the baby is (understandably) much smaller, but labor none the less. It hurts. It is not something I wanted to ever know about.

I was mad for a split second, because we just got comfortable enough to announce and tell people. Not even a week later and we were telling people there was no heartbeat. I think that because of my reaction to my first loss everyone...I don't know....expects something from me. They expect me to be sadder. More upset. Vocal. I don't feel that way this time. I feel analytically and factual. I feel tired. I take a lot of Tylenol. I've asked Blair for a lot of alone time.

I'm ok.

I still find all these beautiful things to look at every day. Things to be thankful for and that touch my heart. Every day with Ellie is still a miracle and there are some amazing people who are here for me and who love me. I have already started receiving cards from people reminding me of the love that Christ has for us and how we are not alone.

I don't feel alone.

I just feel...well, at the moment, I don't feel much. Maybe I will. Maybe this will hit me in November when I realize that I'm not preparing to give birth to a full term baby. Maybe I'll get sad when I look into Blair's eyes and realize how sad I am that we don't have a little boy with his eyes and dimples. Maybe it will hit me like a ton of bricks and my world will fall apart.

That's not where I am right now though. Right now, this night, (when I should be sleeping because Ellie is....) I'm just ok.

So thank you. Thank you for your love support well wished condolences all of it, thank you.

But God knew what His plans for this baby were, and He prepared my heart. So while I am giving my body time to heal, for the most part, I'm ok.

Really.

I'm ok.

Labor of Love: One Week Out

I’m thinking that it will take me a very long time to type out the story of Ellie’s birth. It’s really her story.  It’s a beautiful story. I love it, I love everything about it. You know why? Because at the end of it, there is a beautiful baby girl, one who is lying next to me in a pink blanket with little whales on it.

Ellie’s birth story starts on a Tuesday, June 17, the day I was supposed to go to my last day at work before leave. Instead, that morning I called and said that there was a chance I might be in labor and that it would probably be best if I didn’t go in that day. I made the right choice. I won’t go over all the details, because I’ve already talked about all that. As embarrassing as it was to have to send my midwife and birth team home not once but twice, I think this is where I mentally, took a turn for the worse.

Thursday and Friday I did everything and anything to take my mind off of the fact that this week I’d had those contractions and that it had all happened. I was trying to remind myself that labor takes a long time that it could still be weeks before I actually had my baby, that it was all good. I went for walks, I played in the pool, ate talked laughed, hung out with friends. I tried very hard to tell myself that she was not coming this week, that it would take a long time that I needed to be patient. I prayed. I hung out. I felt huge. I felt like I was on the edge of something that I couldn’t explain.

So. Saturday. I woke up a little while after Blair left for work and sat on the edge of the bed. I got up, used the bathroom, came back, and there was this wet mark on the bed. And I thought to myself “I’m pretty sure I didn’t wet the bed…” I knew that this could be my water, but was unsure. And I didn’t want to sound the alarm again without it being the real deal (this would be a common theme throughout the day, and I believe some part of the reason we ended up transferring, but we’ll get to that). I took a walk with my mother in law, found out my best friend in Va Beach who was ALSO VERY pregnant was being induced, and walked back home. Once we got back home, I started to pray for my friend, and tried desperately to ignore the contractions.

I couldn’t ignore them anymore. My wonderful mother in law helped me upstairs, made sure I was ok, I called Blair, and my mom and asked them to come. I did NOT want to call my midwife yet though. I did not want to call the fairy godmother. I felt like people had already been here so much that I didn’t want them to come unless, you know, my body was truly in labor.

When Blair came home, and my mom got here, they made the choice to call my midwife. She was on her way. We called the fairy godmother. We walked, and stood, and rocked, and the contractions got closer and stronger and more intense. By late that evening, I really truly felt like my body was ready to push. We began trying different positions that encouraged baby to head down. We worked at this for what seemed like a long time to me. I was getting so tired. And I was so ready to meet our girl.

But. Around nine (I think? I could be wrong, time stopped working for me after a while) we took a break and did a vaginal check to see where I was. What this check told us was very revealing.

I was still only 5 centimeters. I was not dilated enough for pushing to do much. And this is where my story goes from “home to hospital.”

We were given options. Go now just to make sure baby and I were alright or go to sleep and see what happens in the morning. Everyone left the room and I looked at Blair. I still wasn’t sure what we should do. We prayed together and decided to go to bed. Ameh left, the midwives left, and my mom went to sleep out on the couch (she said couldn’t leave). Before leaving, my midwife prayed with me and gave me some Benadryl to help me sleep.

I couldn’t sleep though. Normally that stuff knocks me out (ask Teri from camp…I had some once while we were out craft shopping…it was very special) but this time, it didn’t. I was up all the time because of contractions and they hurt. I would get up with them, pee, come back, try to sleep, I would try to be quiet through them, but would always whimper and wake Blair up. He tried to help, applied counter pressure in my back, but absolutely nothing helped.

At this point, mentally, I was a little out of it. I had called people there, sent them away, labored, bore down, changed positions, all of it. But as far as I knew, I was still only at five, and no one could explain why that was. So…sad to say, I kinda freaked out. That last time, I woke Blair up and said “We need to go, we need to go now.” He called the midwife to let her know, I started to pack things, realizing I had NO idea what you needed to bring to a hospital. I went out to ask my mom, and out there with her, I cried. I didn’t understand why my contractions weren’t doing anything, I didn’t understand what was taking so long, and I was convinced something was wrong with my baby.

I threw stuff in a bag and off we went. We followed behind my mom who, according to my husband, did not go the right way and drove to slow. While in the car, I had these intense contractions…I would roll down the window and try to remember to breathe. Blair was my rock. He told me that no matter what, all that mattered was Ellie and I were ok.

Once we were at the ER, I was wheeled back to labor and delivery. They had already been informed of my situation and they gave me a gown and asked to do a cervical check. When they checked me, I was at 7 cm. Every now and again I give Blair these “What in the world faces?” and I know at that point I gave him one. I did NOT think that anything had happened, in my panicked brain, nothing would have happened. So, they admitted me.

I have to say, the people at the hospital were amazing. They listened so well to everything that I wanted. I basically had the same kind of birth I would have had at home, the only difference was that they broke my water around four am, I believe.

Labor picked up hardcore for me after that. And even allowing them to break my water was a huge leap of Faith for me. I had always intended to let things happen naturally. When they asked if they could, I looked to my husband and my mom for their strength to make a choice, and they loaned it to me. I held their hands while it happened, asking Blair with my eyes if we were doing the right thing. I know it does not seem like much, to allow someone to break your water, but for me, as I said, leap of faith. He really comforted me, told me that we had done the right thing.

We had. After that, it was like my body kick started. Even though I was so so so tired, I knew that she was coming soon, this time for real. I could feel the contractions build, could feel myself getting ready. I knew that the work was just beginning. Right before a contraction I would get really cold and pull the covers up, but then I would get hot with the contractions and throw them off! I held Blair’s hands and my mom’s, if either of them left me, I called them back. In between, I let my body go limp and I would sleep for however long I could.

I’m not sure when things changed or how they changed, but they did. And I was ready. I would wake up and bellow through contractions. I’m not sure how much time the doctor had to actually get “Set up” I know I didn’t want to wait for her though. I did what my body was telling me to do, I pushed. It was intense.

I felt her. I felt her move through my body, I felt her crown, I felt her head pass through, and I felt her slide between my legs and the next thing I know there is this tiny human right on my chest in all her grossness. It was beautiful and wonderful and everything I ever wanted.

I don’t remember a lot of things, which is why I’m glad Ameh was there taking pictures. I remember feeling like there was no way I could make this happen. I remember being at home lying in bed begging God to help me. I remember looking at Blair and seeing strength there. And I remember this incredible sense of euphoria when she was there on my chest. This beautiful beautiful baby…our gift for just a little while.

God is good. I know I said that. I know I thanked him. I know I forgot that I still had to push to get my placenta out. Blair reminded me of that a few times. I vaguely saw my mom and Ameh hugging and crying. I kept looking at my baby and then at Blair.

Three years ago…I never would have thought I would be here. I never thought that I would be married, never thought that I would have a daughter (I HAVE A FOR REAL BABY, WHAT!?), I didn’t think that I deserved it. Let me rephrase this, I don’t deserve it. I am blessed. Terribly and wondrously blessed. I am so incredibly thankful for this gift.

Eleanor was 7 pounds 2.5 ounces, 19 ½ inches, she was born at 6:28 AM on June 22, 2014. She is beautiful. She is amazing. She is already incredibly goofy and makes some of the best faces I’ve ever seen.

In the past week I have fallen so deeply in love with her, that I’ve fallen in love with God all over again and with Blair. He comes home from work and we are the first people he has to see. He’s had to work so much…but each night he comes home, no matter how tired he is, he holds his baby. He talks to her, he asks for pictures while he’s away. He is wonderful. He was so strong for me…and even though people have told me I was strong, I didn’t feel that wat though.

It took me a hot minute to be ok with the fact that we transferred. At the time I wasn’t upset about it. Most days I’m not upset about it, the hospital did a great job of making me feel like I was in charge of my daughters birth story. However…I’m sad that Doran didn’t get to greet Ellie first thing, it was stressful thinking about how we are going to pay that bill, and it wasn’t what I wanted. But what I want and what I actually get are different things, and I got my precious baby girl. Transferring, this time, was the right thing for me. Mentally, I think it helped me let a lot. I would still want a home birth; it’s a dream that I am going to fulfill one day. I know this. In reality I don’t feel that I failed or did something wrong. I did what I thought I needed to do for me and my baby.

She’s here in my lap right now. Snoozing away. Being perfect. Being wonderful. Just being.

I’m amazed at what God has done in our lives. I’m amazed at this little girl. And in the past week, I have come to know what a mother’s fierce love is. And she’s beautiful. She’s just absolutely beautiful. 

The Cost

Blair and I were reading not long ago that when you blog you should do so with some sort of purpose. I'll be honest, I'm not sure what my purpose is for writing except that I like to and it helps me organize my thoughts. I also live under the impression that if you can help someone else in ANY way, well, you should. Especially when you're a Christ Follower. When did we become so tight lipped? Why is it so hard to want to share our lives to help one another?

Granted, at the moment, I'm all about Baby Girl. I'll be honest, it's been a journey, and I like to chronicle it here for you people/maybe a little for myself. We as a couple and individually have learned a lot. It's important for me to share, because for once, I didn't let the bad outweigh the fact that God is still working in my life. I'm learning things about the character of God that I'm not sure I understood before.

This weeks post centers around one song, ONE. We went to visit the Fairy Godmother this weekend, because I have been feeling AWESOME and wanted to see her. She got to feel her Lennie (NO ONE ELSE IS ALLOWED TO CALL HER THAT, HER NAME IS ELLIE OR ELEANOR)(for the record) kick, made us dinner, we watched stupid movies, and she had no idea that we were coming. We also got to see the Fairy Godfather. The whole hour long drive there, we just got to be together. Just got to live. Just got to chill out man. There was much talking and much singing. This song has been in my head all week.

"Real Love is not afraid to bleed."

Soak that line in for a second. It stuck with me and I started to think allllll sorts of thunks. 

See, I love God, I do. I love Jesus, I love the Bible, I mean, if you can't tell that by now, then you might have missed something. I am learning how to live in my life in a quietly bold way. One where I am able to say my opinions without being a jerk. Christians, we can have our beliefs, it does NOT mean we have to be rude or mean about it. I believe that Jesus, being God, took the form of man, came down, died for me. 

Died for me. Bled for me. Think about this. The cost for Jesus to LOVE me the way He wanted to, was to bleed for me. This song says "I've counted up the cost, and you are worth it." What is the cost?  Me. The cost of following Jesus is that I pursue Him, love Him, seek Him, get to know Him. I'm not selfish enough to think that this world is all about me. I forget it sometimes, but in reality, I know that in the end I want people to know WHO I loved, instead of just that I did. 

As my belly grows bigger and bigger, I think about what this baby costs us. Not money wise, but time wise, and life wise, and physically. In just a few short months I will prepare to work in such a way that I have never worked before. I will get tired, I will want to quit, I will want to stop, it will hurt, it will take all the strength I have, but in reality? It's not about me. 

What you might say? You being in labor is not about you? Are you crazy?

No. Labor is about bringing new life into this world. Therefore labor is about my child, not about me. I hope that what I'm saying makes sense. Because all the sudden, I understand Jesus just a little more. He knew the pain that awaited him, I know the pain that comes from childbirth. He knew that he would bleed, there is a fair amount of what people call "birth grossness" when it comes to labor. He knew that the cost of what He was doing was worth it. I know that the cost of having my daughter with us is all this HARD work that I will have to do. 

But I've counted up the cost, Eleanor Amanda Ray is worth it. And it must be real love that I feel for her, because I'm not afraid to bleed, I'm not afraid to spend hours waiting and working for her, I'm not afraid of whatever pain might come, because at the end, I get her. 

As I thought about this, I thought about my Jesus in those hours before the cross. You know, Easter is coming, and while we celebrate the fact that um, you know, He ain't dead, let's go back and read what He did. Read those chapters in John. Out loud. Let yourself cry because of the pain and blood loss. Remember that He did it for you, just because it's real love, just because He loves you. Remember that all He wants is a better life for you, all He wants is your Heart, and man, once you've tasted that Love, it's hard to want anything more. 

Then call your Momma, if you can. Say thanks for bleeding for you, working for you, for bringing you here. Tell her thanks for thinking you were worth it. And if you can't thank her, or you don't speak to her, thank God. The fact that you are alive means that someone really truly loved you. No matter where you are now.  

It's All Good

Over the course of the past couple of weeks, I've been thinking about a lot of things that I've seen or read in the great wide internets. I've gathered ideas from people, from their blogs, from posts of Facebook, from articles, and from my own writings and ramblings. I had a moment of clarity today in Church where I realized what it all really boils down too.

Are you ready?

Here's what it comes down to: God made all these different people physically, but He also made all these different personalities, and you know what? I like who I am. 

Let's delve deeper into this thought process, hopefully it makes sense. :)

See, I'm an emotional person. When I get worked up about something, I cry or get really loud about it. When I hurt, I don't hide it, and when I think something, most of the time I share it. I wear my heart on my sleeve, people don't have to guess where they stand with me, they normally know. I don't spend a lot of time around people who get under my skin, and I try to share my opinions in a well mannered way (sometimes, this doesn't work, I never said I'm perfect, I'm still letting God work in me). I am very vulnerable, I tend to share things that have happened to me openly and honestly.

I was thinking about a time at camp when I turned 21. That was the Summer of Project Six. My best friend (who was later in my wedding) gave me a box of 21 things, all in increments of six (six ping-pong balls, six coloring pages, six fly swatters, stuff like that...). As I opened that box in front of my fellow staff members, I openly and honestly wept, and then proceeded to bare my heart to them. Told them what "six" meant to me, and how I'd been working on some things that God really needed to address in my life. It was a big deal, and some people don't handle vulnerability so well. I don't mind. In fact, thinking about that time makes me smile, it was beautiful. It was healing for me.

I like to post stupid Facebook statuses. I like to tell stupid stories about things that we, or I, do. I don't mind telling people when a bad day is a bad day. I like to tell them when a good day is a good day. One Mother's Day I sat at a restaurant and cried because I was asking my parents to forgive me for years of acting out and being a poop to them. My Mom said, "Maddie, it's ok, if you're crying, we know it's important to you." I love that she told me that.

I was sitting in Church thinking about these experiences and I just smiled because, you know, God made all these personalities. How much fun does he have doing this?! I read a blog post from another "camp" friend who was talking about her two children, and how different they are and how beautiful it is,and I just thought, she's right. All these people, all these different ways of handling things. Where I am loud and outspoken, my husband is quieter and more analytically, and it's all so beautiful. Two of my best friends have the same mental problems and didn't get along for a long time, and finally a certain little girl brought them together, and it's beautiful. So alike and so different. All these things, all these people!

Why do we act like personalities are diseases? Shouldn't we embrace and rejoice in what God has created? There are people who don't get me, and there are people that I don't get. And that's ok. There are people who think that I should keep my emotions in check and not share so openly about things, and there are people who I wish would share more who don't, and that's all ok. We are different, beautifully and wonderfully different and I hope and pray that my daughter knows this one day.

She's being created, right now, right in my womb, becoming a person with eyes and teeth and hands and organs. And I just thought...she's also becoming her own person. Will she be emotional and explosive like me, her Momma (Oh Lord help us all!) or will she be quiet and analytic like her Daddy? Will she have his focus and mood problems? Will she wear her heart on her sleeve? Can I protect her if she does? See, we don't know. But God does.

God knows. 

It was such a neat thought to know that He knows her personality. That He knows my personality, that He delights in all of our personalities. We are all so fearfully and wonderfully made.

I just decided today that I will never run from this person that I have become. I will never stop telling you when a bad day is bad (And when it is, man, I just feel like my world is ending...) or when a day is good (and when it is man, I just feel like I'm on cloud nine...). I will always want to tell people goofy stories about Blair and I, and eventually Ellie, and eventually and Lord Willing, the other children He blesses us with. I hope and pray that I can learn to take delight in all these personalities, just like my Heavenly Father.

You know, there are seven kids in my family, and none of us are the same. We are all so brilliantly different, our spouses are so amazingly different, and my nieces and nephew are all so wonderfully different. Sure, some of share the same characteristics (my big brother Nate and I could be twins...and Josh and Evie are two peas in a pod..) but it's so wonderful. I'm thinking it would have been pretty boring for us if we were all alike. Not to mention my parents would have been bored out of their mind, we certainly made life interesting for them. Especially me and Josh...we used to fight a lot. :)

But the point is I like myself. I like who God has made me.

And I like that God made all these different people. I wish that we could all just see that in one another, and celebrate it. We aren't all alike. We don't think alike. And it's ok.

Really, truthfully, it's all good. :)